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Hi ladies,

I was just diagnosed with POF in August. Like some of you have shared, I have also been feeling alone and worthless. I feel like I have let my husband down. I am just looking to talk with someone who can relate.

Hi Christy,

I'm so sorry to hear that you have been recently diagnosed. It is quite a difficult journey, and it is extra challenging because nobody ever talks about fertility out in the open. I felt so alone until I made this site and found other incredible, strong women who share this diagnosis. Please feel free to email me at premature.ovarian.failure.us@gmail.com and I would be more than happy to set up a time to talk on the phone or by email. Hang in there; it gets easier with time. We are here for you! :) <3

POF is so hard to go through :( especially when I don't know anyone else wiht this

Hi Jessica,

I wanted to let you know that I came across your post tonight just as I am feeling so alone in this as well! It is good to know that we are all here together in this. I know we are all hurting and trying to navigate this situation. But it is great to know that this support network is here. You are not alone, and I'm not either :). I wish you the very best.

Dear Hayley,

Thank you for making this site and discussion forum! I have felt so alone with my diagnosis and it is good to know there are others out there. One question: are any fellow POF sufferers on the generic estradiol patch? I've been experiencing some weird side effects ever since my insurance switched me to generic from vivelle dot.

Yes- I have had some weight gain, breast enlargement, and anxiety ever since I started the generic form! It's so hard to know if it's correlated or not... been a pof sufferer since age 21 and I've had anxiety off and on.

Me too- I've noticed those effects on the generic as well

Please use this discussion space to ask questions and reach out to others who share the diagnosis of premature ovarian failure. I am here to support you and I understand what you are going through!

I will never forget the day I was diagnosed and my doctor told me I have a next-to-zero chance of ever having biological kids.

I was 24 at the time, and had suffered irregular periods since age 20 or so. I had finally stopped getting a period altogether, and was having intense hot flashes, which led my primary care doctor to send me to get my hormone levels tested immediately.

Though I initially felt sad, hopeless and worthless, I have since undergone an incredible personal journey and now feel like my diagnosis has allowed me to grow personally in ways I had never imagined possible.

Please don't hesitate to ask questions about my journey. Hang in there! You can make it through this.

Hi Hayley,

Thank you for sharing your story. I was just recently diagnosed after trying for 2 1/2 years to concieve with my husband. I'm 28. My periods were always a bit irregular, but they became REALLY irregular when I was 19. At the time the OB-GYN chalked it up to stress.

When I was first diagnosed I wished that I had been diagnosed sooner. I felt like my husband and I wasted time trying to conceive when, had we known, we could have gone a different route from the beginning. Now, we're paying off medical bills while trying to figure out how we'll be able to afford an adoption. I started wondering if my husband felt differently about me or if he would have done anything differently had he known before we were married.

Then, I read another woman's story. She was diagnosed as a teenager, and said that she struggled with relationships because of it, distancing herself from potential romantic partners, fearing that they wouldn't want to be with her because of her POF. Her story really gave me perspective, and it just shows that the grass isn't always greener on the other side. There just isn't a good way or a good time to find out you have POF.